tag:blogger.com,1999:blog-6825243.post3127658151282806875..comments2024-01-06T07:53:11.832-08:00Comments on disabled Christianity: More on disability as commodity (commoditization of disabiltiy)Jeff McNairhttp://www.blogger.com/profile/10029386598033932429noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-6825243.post-27330851554073818602013-05-21T20:06:52.817-07:002013-05-21T20:06:52.817-07:00I feel that our government has no clue what to do ...I feel that our government has no clue what to do with the money that they give out. They do not know because they do not want to know or even sometimes care. They give out money so they do not have to deal with you and your child. When people say "I guess this is the best we can do" to me usually means that they have not even tried to make a modification that will actually help the children they just want to use the old way.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6825243.post-71410877428553381382013-05-21T18:12:57.420-07:002013-05-21T18:12:57.420-07:00With most governed monies there is a lack of effic...With most governed monies there is a lack of efficiency and effectiveness, due to, the politics/administration dichotomy. Although government intentions may be noble; the policies made are broken or system corrupt. Unlike the private sector, the public sector has been given the task to do more with less. The question that rose during this process is, “can it be done?” Of course, but it will take more than the regular Joe to create a system that best fits in the support towards education for the disabled. Finding the right administrator to lead this movement will be a quest but recruiting the right specialists to implement the new system will be the challenge. The United Nations Development Program (UNDP) is looking towards a short-term or ill-planned project, which in effect, affects the progression of a greater outcome. It will bring setbacks due to its thrown together concepts. Most importantly it will leave devastating long-term effects (government will be cleaning up their mess before moving forward, leaving programs and consumers at a standstill). Changing programs for the better takes time and is an incremental process which needs the guidance of those who are experts. Therefore, we need to take out the politics/administration dichotomy and gather the specialized experts. Hopefully then the influence that government has on programs and funding will be utilized to the best ability.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6825243.post-52378674990614032852013-05-16T08:05:42.326-07:002013-05-16T08:05:42.326-07:00I was just thinking about this very thing yesterda...I was just thinking about this very thing yesterday. I get paid 29 hours a month to include my adult son, B, in the community. But there are rules - it must be just him and myself and I may not take him somewhere we would have gone anyway, like church. In other words, it may not be a natural support. So, in order to earn the money (which comes in awfully handy) I have to take him away from the rest of the family to do things that we wouldn't necessarily do otherwise - I have to manufacture outings just to get my "time" in. What message is this conveying to my son? What is this teaching my younger children? I've been known to tell my family that B and I can't go on a family outing (to the park, to church, to someone's house for dinner) because we still have hours to get in and, unfortunately, the family outing doesn't count. So instead I take B to the mall where we aimlessly walk around, getting the time in, but with no actual real beneficial community interaction. We're not even allowed to take a friend of his with us. The rules make our community inclusion manufactured and fake. What's so bad about natural supports? Why do we have to tear our adult child with I/DD away from his natural supports and natural community inclusion to receive financial aid in caring for him at home (which is already time consuming in itself)? I wish we were independently wealthy and didn't need the income I receive through his "community inclusion." Then we could just be the normal, healthy, happy family that we were created to be. Anonymousnoreply@blogger.com