Tuesday, December 21, 2004
U.S. Catholic Bishops part 8
"8. We welcome qualified individuals with disabilities to ordination, to consecrated life, and to full-time, professional service in the Church."
Although the primary focus of this blog has been integration of persons with disability, particularly cognitive disability, into the church we have at times touched on other areas of disability. Although I do not understand all aspects of "consecrated life" as mentioned by the Bishops, I suspect there could be vocations which might be filled by persons with some form of cognitive disability. Particularly those which might not require a great deal of study or theological understanding. Those which would not require the supervision of those without cognitive disability or some of the more demanding aspects of teaching. However, I want to move away from cognitive disability for a moment.
There is no doubt that persons with various forms of disability (physical disability, blindness, deafness, etc.) have been ordained and served in full-time professional service to the church. If they did not have these disabilities when they began service, they certainly have developed them over time. As we are using a Catholic document as a point of departure for this discussion, one need only consider the Pope who with advanced age has found himself increasingly facing apparent physical disabilities. Although these disabilities have impacted his ministry, they have in no way limited the impact of his ministry. I suspect there are many who upon seeing his disability are actually encouraged by the fact that he can relate to the physical issues they are facing in their lives.
There are also those who have been disabled by others in the service of God. The Bible speaks of horrific tortures people have faced over time because they refused to either denounce a belief in God, or refused to stop telling others about God. I cannot imagine we would now disqualify those who endured such trials from working in ministry.
I have known a variety of people who have served as ministers who also experienced disability. One of the most powerful sermons I ever saw was delivered by Rev. Steve Chance. He is an ordained minister who also has cerebral palsy. I remember Steve would sit in the front row of the church waiting to be introduced. Upon his introduction, he would slowly go up the steps leading to the stage so that he could deliver his message. You struggled with him as he made his way up the steps. Just the act of him climbing those steps drew you in, gave you some small bit of empathy toward the challenge moving around the community might be for him. As he would reach the platform and move toward the lectern, you were relieved. Steve, somewhat haltingly, would then turn and rivet the audience with a brief pause. "Is God fair?" he began, and you knew that he had a good notion of whether on not God was based upon his personal experience. Contrast that presentation with the good looking well built pastor who bounds up on stage and asks the same question. Steve had and has a vital ministry because of the experiences God has placed in his life. Experiences you and I and probably Steve would chose not to have, but the end result is a powerful witness for God in a way that others could not emulate.
I was in a meeting the other day where several deaf leaders in their church spoke about the incredible benefit of having a pastor/priest who was able to sign. It was not shared whether or not the person they spoke of was deaf himself. If he was, what a great investment on the part of the church to train up and place him among others who spoke the same language and had similar experiences (I am reminded of God coming to the Earth in the form of man). But even if he wasn't deaf, what an obvious thing to do to minister to a community. Can you imagine going to a church where you not only don't speak the language they speak, you can hardly even perceive it.
Involvement of persons with disability in church leadership is not a mandatory thing that must be done, but it does send a message to the congregation about what the church thinks about persons having that characteristic. If I see persons with my same racial flavor in leadership, it implies to me that people like me are valued. If I never see anyone who looks like me in leadership it implies that people like me cannot rise to leadership at worst, or at best that the church is too lazy to find someone like me.
I remember that at the university where I used to teach, a new building was built with a large lecture hall. The stage of the lecture hall had no wheelchair access to it. I can imagine the discussion between those who planned that stage . . . "Do you think we need to have wheelchair access to the stage?" "Naw, nobody in a wheelchair would be speaking to this group. Besides, if the university thinks its important, they can add a lift or something later." The ultimately did.
If the church wants to engage the community, to bring the community in, to minister to the community, then the congregation must reflect the community AND the leadership must reflect the community as well. If I don't see myself there, then I won't come.
McNair
Thursday, December 16, 2004
U.S. Catholic Bishops part 7
"7. We must recognize and appreciate the contribution persons with disabilities can make to the Church's spiritual life, and encourage them to do the Lord's work in the world according to their God-given talents and capacity."
You know, I honestly don't think we do recognize and appreciate the potential contribution persons with disabilities can make. We have an idea of what it might be like if persons with disability were integrated into the church, but really, we don't know.
I remember back in 1985 when I bought my first computer, a Mac (it was amazing). Although I had a notion of what I might be able to use a computer for, part of me felt like I was buying a Cadillac to go the grocery store when I already had a perfectly good electric typewriter. Now, I can hardly imagine life or work without a computer.
Perhaps if persons with disability were truly integrated into the church we would begin to recognize the contributions they have always been available and able to make but never had the opportunity to make because they were not fully included.
The Bishops also chide us that we must "encourage them to do the Lord's work." As I have stated elsewhere in this blog, a friend of mine named Jack is an adult with developmental disabilities who lives at a healthcare center for seniors. Jack lives there because of a medical problem he has, however, he is far and away the youngest man at that place. Many of the other residents are in advanced stages of senility, alzheimers, whatever you might want to call their gradual mental regression. But Jack knows all their names, says hello as he walks through the facility, talks about the Lakers (his favorite subject), reads the newspaper with them among many other things I am sure I am just not aware of. Jack is a minister of friendship and encouragement to the people living in that place. He also facilitates prayer for people in that place, staff and residents at times, through mentioning their names at times when we pray at church.
In my mind there is also something special about the prayer of a person with cognitive disability. Now don't get me wrong. The specialness has nothing to do with some idea that they have a special soul, or any other theological goofiness. The Bible says that the prayer of a righteous person avails much. Other notions of prayer are linked to faith. I find that persons with cognitive disability often have great deal of faith (as Jesus recommends, the faith of a little child). I really don't think God looks on us and says, "Your faith isn't as good as someone else's faith because you are cognitively impaired. Or your faith is greater because you are a professor at CBU." It is more about what we do with what we have. If I am to have the faith of a little child, then there might be something that I need to loose in order to gain that innocence. I need to loose my overly analytical mind, my need for proof. We are saved by faith. I see some of my cogntively disabled friends much ahead of me in terms of basic faith in God. I also find they are righteous. No they are not perfect. But their unrighteousness is often different from my unrighteousness.
People with unquestioning faith are definitely in need in the church. I could give many examples of such faith in persons with cognitive disability. Times where they encouraged children and adults with their "take Him at his word" approach to God.
So although I appreciate the Bishops' statement, and agree with it, I really don't think we know of what we speak, as the saying goes. Are there blessings to be had if the church is more open to and inclusive of persons with disability? What would we see if the congregation represented the community?
Lets find out...
McNair
(fcbu)
Tuesday, December 14, 2004
U.S. Catholic Bishops part 6
"5. Since the parish is the door to participation in the Christian experience, it is the responsibility of both pastors and laity to assure that those doors are always open. Costs must never be the controlling consideration limiting the welcome offered to those among us with disabilities, since provision of access to religious functions is a pastoral duty."
The parish (aka the local church) is indeed the door to participation in Christian experience. It also is the responsibility of both the pastors and the laity to keep the doors open. I have been in situations where the pastors kept the doors open to persons with disability in spite of the laity and the laity kept the doors open in spite of the pastors. The latter seems more difficult to me. But a larger question is what is meant by keeping the doors open.
In one of the Cal Baptist courses I teach, students are required to interview their pastors about ministry to persons with disability. Perhaps the most common answer they receive is that the church is 1) wheelchair accessible and 2) has handicapped parking spots. Somehow, these legal requirements for public buildings have been confused with the Bishops' notion of the churches' doors being "open." Obviously, openness must mean something more than simply physical access. The fact that I can go somewhere doesn't mean that I am welcomed there. There is a qualitative difference that distinguishes open in terms of access from open in terms of wanting or desiring someone's presence. The latter form of openness implies that those who are open have done something to be more than just physically accessible.
The Bishops imply openness is participation in the Christian experience. For some that implies a facilitation of participation as participation will not occur on its own. Its like the catalyst in a chemical experiment.
catalyst - A substance usually present in small amounts relative to the
reactants, that modifies, especially increases, the rate of a chemical reaction
without being consumed in the process. (American Heritage Dictionary)
Interesting definition.
Small amounts, yes.
Especially increases the rate of reaction, yes.
Without being consumed in the process, yes.
Costs are at times given as the reason for a lack of programs for persons with disability. The point I find interesting about this excuse, is that we accept it. Perhaps it has just been used for so long, that we assume it is a justifiable response. But I would say, that the next time someone tells you they cannot afford something relative to serving persons with disability, ask them to share with you what the specific costs are, and how they came to determine those costs. I am quite confident they do not know of what they speak.
". . . since provision of access to religious functions is a pastoral duty."
I do not claim to be a Bible expert, however, I cannot remember a time in the New Testament when people were excused from ministry on the basis of finances. It is almost as if finances are somewhat irrelevant. Please do not get me wrong, I understand that things cost money, however, there is much that can be done without money. A major focus of the Bible is both ministry to the poor, and the responsibility of the poor in ministry. God would not call us to only expensive forms of ministry as not all would be able to participate then. It is just as God would not make walking, or vision, or hearing, or cognition a prerequisite to ministry. We are all called to serve independent of our abilities. To whom much is given, much is expected, however, there are very few to whom nothing is given and nothing is expected. We cannot use the excuse of no money for nonparticipation in ministry. That is the cool thing about God's call. Pretty much all of us have what is required for some level of service, we have the ability to be servants independent of our salaries.
The Catholic Bishops are all about access, facilitating access, and removing barriers. This statement (statement 6 above) would not be relevant if the Bishops had not seen a lack of access or the placement of barriers somewhere.
McNair
Friday, December 10, 2004
Christmas message from the Archbishop of Canterbury
McNair
"A few weeks ago, I took part in a discussion that involved a number of people working with children and young people who suffer from different forms of 'autism' - the kind of disorder that seems to cut people off from ordinary communication and shows itself in strange repetitive behaviours and sometimes in violent outbursts. We watched a video showing the work of one of the most experienced therapists in Britain, and then heard her talking about what she is trying to do with her methods.
The first thing we saw on the video was a young man, severely disturbed, beating his head against a wall, and then walking fast up and down the room, twisting and flicking a piece of string. The therapist's first response was strange: she began to twist and flick a piece of string as well. When the young man made a noise, so did she; when he began to do something different, like banging his hand on a table, she did the same.
The video showed what happened over two days. By the end of the two days, the boy had begun to smile at her and to respond when touched. A relation had been created. And what the therapist said about it was this. Autism arises when the brain senses too much material coming in, too much information. There is a feeling of panic; the mind has to regain control. And the best way of doing this is to close up on yourself and repeat actions that are familiar; do nothing new, and don't acknowledge anything coming from outside. But when the therapist gently echoes the actions and rhythms, the anxious and wounded mind of the autistic person sees that there is after all a link with the outside world that isn't threatening. Here is someone doing what I do; the world isn't just an unfamiliar place of terror and uncertainty. And when I do this, I can draw out an answer, an echo; I'm not powerless. And so relationship begins.
To see this sort of thing in action is intensely moving. This is real mental and spiritual healing at work. But it gives us a powerful imageof what it is we remember at Christmas.
Human beings are wrapped up in themselves. Because of that great primitive betrayal that we call the Fall of humanity, we are all afraid of God and the world and our real selves in some degree. We can't cope with the light. As John's gospel says, those who don't want to respond to God fear and run away from the light. But God acts to heal us, to bring us out of our isolation - which is as bizarre and self-destructive as that young man beating his head against the wall. And he does this in a way that is just like the therapist in the video. He does what we do; he is born, he grows up, he lives for many years a life that is ordinary and prosaic like ours - he works, he eats, he sleeps. Here is ultimate love, complete holiness, made real in a back street in a small town. And when he begins to do new and shocking things, to proclaim the Kingdom, to heal, to forgive, to die and rise again - well, we shouldn't panic and run away because we have learned that we can trust him. We know he speaks our language, he has responded to our actions and our words, he has echoed to us what we are like.
Christ does not save the world just by his death on the cross; we respond to that death because we know that here is love in human flesh, here is the creator's power and life in a shape like ours. As we read the gospels, we should think of God watching us moment by moment, mirroring back to us our human actions - our fears and our joys and our struggles - until he can at last reach out in the great gestures of the healing ministry and the cross. And at last we let ourselves be touched and changed.
That's what begins at Christmas. Not a doctor coming in with a needle or a surgeon with a knife, but a baby who has to learn how to be human by watching; only this baby is the eternal Word of God, who is watching and learning so that when he speaks God's transforming word we will be able to hear it in our own human language. He is God so that he has the freedom to heal, to be our 'therapist'. He is human so that he speaks in terms we can understand, in the suffering and delight of a humanity that he shares completely with us. And now we must let him touch us and tell us that there is a world outside our minds - our pride and fear and guilt. It is called the Kingdom of God.
May the blessing of Christ our incarnate King be with you all at this season."
Rowan Cantuar
(c) 2004 Rowan Williams
Tuesday, December 07, 2004
U.S. Catholic Bishops part 5
"5. Parish liturgical celebrations and catechetical programs should be accessbile to persons with disabilities and open to their full, active and conscious participation, according to their capacity."
Accessiblity and participation.
Accessibility is much more than wheelchair access or handicapped parking spots. Today, virtually any new, public, building will have many accessibility aspects nailed down because it is the law. However, accessibility is much more than that. If I have chairs in my auditorium, does that mean I am willing to accept any person who sits in those chairs? Hardly.
Accessibility should imply a certain desire to have people involved, it implies that I have done a bit more of something, something out of the ordinary perhaps, to facilitate access. So in my church, for example, we not only say we invite children with autism to be involved in the children's classes, we have people who are available to serve as "buddies" to help the child feel a part of the group. It is a small thing, but it allows one to say, "Not only are you and your child welcome here, but we have buddies to help your child to be successful in the children's program here." It implies we have thought about people like you, with your life situation before. It implies that we value you, so, we have come up with a way to make access to our church easier for you.
The Bishops' statement says access to "liturgical celebrations" and "catechetical programs." Although not a Catholic myself, I recognize the importance of liturgy to the Catholic tradition. If one is to be a full fledged Catholic, she must have access to liturgical celebrations, which include much of the public meetings of the faithful. The catechetical programs are the educational programs leading to catechism as well as other benchmarks of church membership/participation (I would assume). Persons with disability should have access to these educational programs so that they can participate fully, "according to their capacity."
On the basis of experience with persons with cognitive disabilities in church situations, it would be easy to dismiss someone as not having the capacity to benefit from a variety of programs the church has to offer, if you don't provide time and opportunity for those individuials to participate in the programs. Yet, there are people who are prayed for on a weekly basis, simply because friends of mine who are adults with mental retardation ask our group to pray for them during a time of prayer requests. I have prayed for the bus driver of several men who make the request each week, for years. If you honestly believe in the power of prayer, you must believe that the desires on the part of those men to have their bus driver prayed for has somehow made a difference. They also always ask me to pray for their teacher. Another man who lives in a senior center (arguably not the most appropriate placement for that man, although I think he has a ministry there as he brightens the lives of many of the residents through his knowledge of sports and unabashed ability to start a conversation with anyone) asks me to pray for his mother and a nurse who helps him each week. I can't help but wonder how many of the other residents are not prayed for each week. One staff member always asks him to pray for her as well and we make a point to remember to pray for that person. I guarantee to you that were those men not involved in the program at our church, for sure the people for whom they ask for prayer might not be the topic of prayer, at least not by me and others in the group. Will these men remember that Paul and Barnabus split up and Paul went with Silas and Barnabus with Mark (our current lessons are from Acts)? Does it even matter? They are participating to the extent to which they are capable and they are making a difference in their own lives as well as the lives of those for whom they are praying or facilitating prayer through their request for prayer.
The Bishops touch on a notion which I suspect has a great deal behind it, that of "conscious participation." I suspect this term implies a notion of understanding. My son recently took a class in Philosophy as a part of his college curriculum. At the end of the class, students could ask the professor any question they wanted. He asked, "Do you believe in God?" He replied "No," but followed up the statement with the analogy of him being like a flea on a dog, trying to understand what a dog was (as an aside, that is why God-the dog, became a flea-in the form of Jesus, so we would get some understanding of who He is). Anyway, we understand a lot less than we think we do. We compare ourselves to others who know less than we and congratulate ourselves, or segregate ourselves on the basis of our knowledge. As I have stated elsewhere in this blog, however, such comparisons are silly. They are particularly silly when we think about what we know about God in relation to what might be known about him, and then we segregate our selves on the basis of what we supposedly know.
"He chose the lowly things of this world and the despised things - and the
things that are not - to nulify the things that are, so that no one may boast
before him. It is because of him that you are in Christ Jesus, who has become
for us wisdom from God - that is our righteousness, holiness and redemption. (1
Corinthians 1: 26-29)"
You know, sometimes the above sounds like a warning to me. It makes me wonder about the things that I choose in comparison to the things God chooses. My choices are evidenced by to whom I give access and for whom I facilitate participation.
McNair
(fcbu)
Wednesday, December 01, 2004
U.S. Catholic Bishops part 4
"4. Defense of the right to life implies the defense of all other rights which enable the individual with the disability to achieve the fullest measure of personal development of which he or she is capable. These include the right to equal opportunity in education, in employment, in housing, and in health care, as well as the right to free access to public accommodations, facilities and services."
Once the right to life is secured (and it is arguable that it has not yet been secured, as evidenced by the Bishops' third statement) our hope would be to expand rights to include those which facilitate the fullest measure of personal development. This is one of the reasons this blog spends so much time on opening the church to persons with disabilty as churches do indeed facilitate a fuller measure of personal development, and not just in the spiritual arena. The notion of personal development of persons with disabilities is not one that the church necessarily knows how to do. The comment was once made to me that disabled persons don't improve, so why devote so much time to them? The fact of the matter is that even the most severe of disabled persons do evidence improvement (I haven't done the research yet, but anecdotally I have observed this) although perhaps not to the degree of those without disability. However, as with all church members, it should interest the church whether its members are achieving the fullest development possible, as least as much as they are able to impact development.
Then there should be equal opportunity in
- education
- employment
- housing
- health care
Education is improving, although equal opportunity doesn't necessarily mean access to the core curriculum being used for students without disability. It should mean access to the type of curriculum which would best serve each student (would facilitate personal growth as above). However, sadly many disability advocates have fought for access to the core curriculum, which is a curriculum built upon a social efficiency model (having the greatest impact for the greatest number of people) not a critical/functional skills model. So students have gained the right to a curriculum which is not necessarily even relevant for them. People have confused access to the core curriculum with integration and so even though children are being educated next to each other, it is arguable as to whether they are receiving the instruction each individually (both those with and without disability) needs to be the most successful.
Employment access has improved somewhat through both the requirements of the Americans with Disability Act, and the increasing recognition among employers that persons with disabilities make good employees. In particular, persons with cognitive disability make great long term workers in entry level jobs. Increasingly, employers are learning that they can save money on hiring a person with cognitive disability to fill positions that have a high turnover rate when persons without disability hold those positions. Actual equal opportunity, well, not quite. The bias against persons with disability is evident in the workplace as employers are simply a subgroup of a larger population who hold the same biases. However, employers go to church and if the church were to involve persons with disability, there would be a greater opportunity for employers to know persons with disabilities and potentially employ them. The gains from network membership are also great in terms of increasing employer tolerance for minor social skill "deficits." More on this aspect of network development is provided at the following website <http://www.jeffmcnair.com/CSRD/networks.htm>
Access to housing, well, they have access to what they may be able to afford. There used to be a program whereby persons with disability were able to receive supplements such that their rent would be no more than a third of their income, however, for whatever reason new applications are not being taken. As a result, I have one friend who is an adult with cognitive disability who pays over 700$ for his apartment and another friend who pays about 260$ for the exact same apartment. The second got into the program when they were still taking applications. Now imagine getting a little over 700$ per month in Social Security, and then having a part time job on the side (part time as you don't want to loose your Social Security benefits) and trying to pay 700$ in rent. As he has stated, he hasn't had the luxury of eating out at McDonald's in the last 6 months because he can't aford it. So access to housing? Access to housing in the worst areas of town.
Health care is better than I might have thought if I hadn't had contact with many of the people I know. I have one friend who has received two kidney transplants, and has been in the hospital on numerous occasions. I have another friend who is dealing with depression who has received great medical support both in terms of long term hospital care, outpatient services and even assistance with medication. Both of these persons have developmental disabilities. Perfect, no, however, I would say it is better by comparison than say housing opportunities by far.
The folks I know also have access to public accommodations (including travel assistance) and various facilities and services. Of course I am not privy to every aspect of their lives, however, I hear few complaints about busses, etc.
So the right to life in terms of other rights is a mixed bag. The church holds huge potential in improving access to other right simply through their inclusion of persons with disability.
McNair
(fcbu)
Monday, November 29, 2004
U.S. Catholic Bishops part 3
"3. Our defense of life and rejection of the culture of death requires that we acknowledge the dignity and positive contributions of our brothers and sisters with disabilities. We unequivocally oppose negative attitudes toward disability which often lead to abortion, medical rationing, and euthanasia."
The notion of a culture of death has been well described by Dr. Wolf Wolfensberger. He uses the term "deathmaking" to refer to a wide variety of programs, positions, laws which would in total contribute to the Bishops' notion of a culture of death. I will go into Wolfensberger's notion of deathmaking at another time. The defense against the culture of death, I believe, does begin with recognizing that there is such a culture in our society. The culture of death can be related to actual physical death, or perhaps more commonly more of a "social death" in which a person with disability is relegated to life situations different from the mainstream but common to many of those with disability. Perhaps a defense of life is made when we acknowledge the diginity and positive contributions of persons with disabilities, however, I always wonder about who those to whom such a defense must be made, are. Are they even convinceable? On what basis would they see persons with disabilities as anything other than worthy of dignity? There is an evil here which must be labeled for what it is.
The notion of positive contributions once again gets back to my last entry about this statement. Somehow, we need to see positive contributions, abilities, in persons with disability in order to make the case for their lives. We need to see abilities, apparently on some scale of worth, which will move the balance of the scale toward the defense of life and the rejection of the culture of death. Honestly, I refuse to play that game because of the evil behind it which requires one to prove someone's worth. I will not argue about someone's worth. I am given a glimpse into the soul of the person I am speaking to, when I hear that they feel worth must somehow be proven. Of course those who would challenge the worth of another assume they themselves have worth.
I too, unequivocally oppose negative attitudes toward persons with disability, in particular those which lead to abortion and other forms of death making (I do share the negativity persons with disability often have toward their own disability: I would prefer that persons with cerebral palsy, for example, not have cerebral palsy). However, there are other forms of negative attitudes which don't directly lead to death which should also be condemned.
I never cease to be amazed at the negativity I see in church people. An instance arose in my own church a couple of weekends ago. Someone who is a wonderful man of God made a decision affecting adults with disability in a very discriminatory fashion, and probably never even saw what he did as being discriminatory. Somehow, he feared the impression of others in the church, in terms of turning them away, or limiting the spiritual experience he was attempting to develop. I would respond by asking, "How can you have an experience with God, when you begin the experience by excluding persons whom God loves on the basis of their disability?" Yet somehow, this seemed logical to him.
I appreciate the Bishops' strong statement in defense of life, however, we must be careful to avoid situations where even our participation in the discussion somehow provides support for those who would detract from the humanity of persons with disability.
McNair
(fcbu)
Friday, November 26, 2004
What are we afraid of?
- fear of the disability being contagious
- fear of the unpredictable nature of the social interactions
- fear that the person with disability might strike out in some violent fashion, particularly toward one's children
- fear of being left alone with the disabled person and "not knowing what to do"
- fear of the entire notion of having a disabled child
Others might also be imagined. Each of these fears are irrational in their own way, yet we allow them to persist and allow them to guide our interactions with persons with disability. The best way to dispell such fears is through direct interactions with persons with disability. Hopefully, familiarity will breed acceptance.
McNair
Wednesday, November 24, 2004
Opportunity Schools Brunch
Anyway, as a speaker, I sometimes find that I get insights in preparing presentations to groups, and even get further insights in doing the actual presentation. Yesterday two ideas came up.
The first is that in the early days of the special education movement which led up to laws giving persons with disability the right to a public school education (50's, 60's and early 70's) we sometimes hear about groups of parents renting churches as places to have parent run schools. The question is whether these schools really proliferated in the United States, and if so, once the federal law came into place such that these schools were no longer "necessary" where did the kids with disability just go to the public schools, and what was the churches' response? I wonder whether many of these schools were actually Christian special education schools or whether it was simply a space renting situation. If it was the latter, which in hindsight it appears it may have been, we as Christians really missed an incredible opportunity. It could be, however, that there were not as many of these church rented, parent run schools as thought.
The second idea is that the vision I share with many others, a vision of the church being open to persons with all types of disability, is not necessarily the church's vision. So a future of openness to persons with disability is a future that may not even be on the church's radar screen. This implies that our first goal needs to be to get that notion into the minds of churches and then the second, to work to make that vision for a future of openness a reality. This is very basic stuff, but it is the starting point.
McNair
Tuesday, November 23, 2004
U.S. Catholic Bishops part 2
"2. Each person is created in God's image, yet there are variations in individual abilities. Positive recognition of these differences discourages discrimination and enhances the unity of the Body of Christ."
The notion of being created in God's image is an interesting one. It must imply something of a positive nature, I would assume. I never paid much attention to the notion when most of the people I interacted with were like me: healthy, apparently happy, got along with others, etc. But then I worked for a year in an institution for persons with profound disabilities. As I walked the halls of that institution, I passed people who literally were so physically disabled, they appeared to fluid lumps of humanity thrown to the ground that solidified to form something resembling a deflated ball. Many of them had accompanying severe cognitive disability to go along with their physical disabilities. I was involved in sensory stimulation training, which I ultimately stopped doing as I felt I was more of an annoyance than a help (I mean imagine not being able to move or communicate, and then having someone rubbing ice on your hand, or a prickly brush across your skin, with the best intentions of course, in the name of stimulating you). Anyway, I looked on those individuals and tried to reconcile the notion that they were created in the image of God with any past ideas I might have had about the concept. It was obvious to me that the image of God is not intellect, it is not physical health, or even as I once thought, social interactivity as none of these were present in these individuals. At this point in my life, it occurs that it might be that all people have a spirit. In the end it is more important from a leveling the field kind of perspective to note that we are all created in God's image. Such a perspective to my biased eyes raises the importance of those with profound disabilities and convicts my own vanity (it is easy for those without disability to see that we were created in God's image, I mean, c'mon, just look at us!).
Yes, it is also true that there are variations in our abilities. I am confident that the Bishops meant the best by this part of the statement, however, it can come off a bit patronizing. I suspect to them, it was simply the other shoe falling in relation to the image of God statement. It is true that we all have different abilities, but I really resist the "looking for the abilities in others" trap as abilities are linked often to worth. I say people have abilities because I am trying to assign them worth. Well I honestly have met people that I don't think have any abilities. And please don't tell me that their severe disability is actually the ability to bring out something in those around them. Variations in our abilities, sure, fine, however, worth is from God in being created in His image, and being loved by him. People get hung up on abilities and variations in abilities.
Positive recognition of ability differences may actually discourage discrimination and enhance the unity of the Body of Christ, but it can also be so much "whistling in the dark." I might actually have something to fear in the dark and whistling does little in light of that fact. Once again, positive recognition of ability differences benefits those with abilities. Recognition of differences in abilities if fine but it really isn't about abilities or the lack thereof. No, God says I have value so I have value. My ability to write a sentence or kick a ball, or smile in a friendly manner must be treated as irrelevancies in terms of worth. This is, I believe, where the Church is in a morass of confusion. It is not about what you can do for me, it is what can I do for you.
- And whoever desires to be first among you, let him be your servant;
- Even as the Son of Man did not come to be served, but to serve and give his life a ransom for many (Matthew 20:25)
Discrimination will go away when we stop having "peeing contests" over abilities and recognize that we are to serve one another. . . when we quit looking at appearances, when we quit feeling the need to affirm abilities because we are so darn fragile. The more needy, the more opportunity for service. You want to enhance unity? Lets serve one another and spend our lives for each other, for many.
McNair
(fcbu)
Tuesday, November 16, 2004
Acknowledge God loves them
"The church needs leaders, but it also needs brothers. I believe in authority, but I believe also in brotherly love. In Philadelphia they respected authority, for they kept the Lord's word and did not deny his name. But philadelphia in Greek means 'brotherly kindness.' It was to these caring brothers and sisters that the door was opened. Let them set out to serve him together and not wait for the specialists; then we shall begin to see what the Church's service really is."
After the excuse of no money, the next most common excuse for a lack of involvement with persons with disability is "I don't have any training." But as Nee says, "serve him together and not wait for the specialists." This is not to demean specialists. I have dedicated my life to the training of special education specialists and there is much that such specialists can learn. However, don't confuse being a specialist with being a willing servant. No one is asking the average church member to develop behavior intervention plans, or teach adults with cognitive disaiblities to read, or how to develop language in those who have no language. But it is reasonable to expect them to carry on a conversation, to take someone out to lunch, etc.
In that passage in Revelation it also says, "I will make those of the synagogue of Satan, who claim to be Jews though they are not, but are liars - I will make them come and fall down at your feet and acknowledge that I have loved you" (Rev 3:9). Now I am not saying that the church is the house of Satan or that people with disbilities are the ones about whom the Lord earliers says"I know that you have little strength," however, something about the statement "I will make them come and fall down at your feet and acknowledge that I have loved you" really resonates with me.
I met a man today who along with his wife is convinced that his church refused to put a birth announcement about his disabled child in the church bulletin because the child was disabled. Elsewhere in this blog I have spoken of other situations whereby persons with disabilities or their families were ostracized by churches or church members or pastors. Too often we treat persons with disability as if we believe God does not love them. By our words or actions we say to them, "God does not love you." But before the Lord has to put me in a position where I am made to fall at their feet and acknowledge that God loves them, I want to do it of my own accord as I believe that is the heart of God.
McNair
(fcbu)
Friday, November 12, 2004
Be a Hero by Molly Myers
McNair
Be A Hero
Do you look them in the eye or pass them by?
Give them rides to the store and church or treat them like fallen dirt?
Are you embarrassed of them - because they act like they're only ten?
Do you mind hearing the same story repeat, will you invite them to share
your seat?
Do they look up to you because your words are gentle and you care or are you
pompous and just not fair?
Don't stare or make fun - make them feel they are number 1!
My aunt and uncle strongly believe, that we are all equal in God's eyes, no
matter the ability, shape, color or size.
Teaching and encouraging mentally disabled is what they do.
for this they are heroes - one of a kind,
the very best you can find !
These disabled adults get to live a significantly better life,
because Kathi and Jeff, have chosen to help them through their
strife.
Be a hero in Someone's life.
U.S. Catholic Bishops Statement 1
1. We are a single flock under the care of a single shepherd. There can be no separate Church for persons with disabilities.
Sometimes when someone writes something such as the above, they are either responding to what they have observed, or are firing a preemptive strike. The above seems to be a bit of both. The latter following from the former.
A single flock under the care of a single shepherd implies we are all the same animal, all the same type. We are all sheep, er, I mean people. The single shepherd is Jesus. Now can you as a shepherd imagine hearing one of your sheep saying, "Fluffy is not like the rest of us and so we don't want him in our herd." As a shepherd you would probably say, "Wow, I didn't know sheep could talk." You would then say, "Shut up and get back with the rest of them, and I won't hear anything else about who is or who isn't a part of my herd." Interestingly, when an animal is rejected by its mother, like in the case of a litter of pups, the caretaker suddenly takes a special interest in the one rejected. The pups look at each other and see differences. The caretaker perhaps sees differences in appearances, but sees the pups as basically all the same. They are each a part of the litter.
The latter part of the statement says there can be no separate church for persons with disabilities. If there were a separate church for persons with disabilities, the question would be why would there be one, why would it be needed? I know of separate churches in the United States, and I honestly believe that those in leadership of those churches have a tremendous heart for persons with disability, and want to both meet their needs in a "culturally" relevant manner, and perhaps protect them from those who are not disabled. There are many problems with this perspective, however.
First of all persons with diability, particularly cognitive disability, aren't of a different culture, they are the same culturally as the rest of us. If they have developed any different form of experience, it is an experience of rejection, they are those who have been rejected. It is totally against Christian principles to say to a group of rejected people, "Hey all you rejected people, lets get together and form a church of the rejected people," at least as it relates to disability. Yes there are those who have done such things among groups like the untouchable class in India, however, that is an entirely different matter. Those people have developed to the point of having a distinct culture. You are born into that caste and as a result experience the same culture as your family etc. Now this doesn't dismiss the fact that such discrimination is wrong and should be fought, however, the situation is different.
People with disabilities are born into virtually any culture and experience some degree of rejection from that culture. So they don't really form a separate sub culture, they have experiences similar to others also experiencing disability. They group with these others not through any cultural affinity (perhaps like the deaf who have a different language in common) but because they have been relegated to the same stations in society, the same communities or parts of communities due to their near or actual poverty existence, the same agencies who provide various forms of assistance. These individuals were not necessarily born into these aspects they have come to experience in their lives, they have spiraled or gravitated toward these ends as a result of society and its constructions of disability.
Now if the church were some country club or golf membership, one might expect that there would be clubs for those who can afford them, clubs for those of importance, clubs for those with less money or influence and public clubs for those who for some reason are not able to attain the status of the higher clubs. The starting of separate churches for persons with disability is analogous to the "selective" clubs. If I can't get into the club I want to join, I will have to form my own club. Of if I cannot facilitate the integration of persons with disabilities into regular community churches, I will start a church for them. People of rejected status will generally not argue with a situation where they feel acceptance. Persons with cognitive disability will probably not recognize the philosophical issues of a separate church. But those of us who understand how things should be, who see the discrimination, must advocate for those who don't recognize the problems.
I know of a young man with down syndrome, about 14, who is still in the first grade Sunday school class. Now he is portrayed as being a "helper," however, he is much more like another first grade student. As a newcomer to that church, if I saw that young man in the first grade class, my response would be "What is wrong with him that he isn't with the other fourteen year olds?" My response would not be, "He is a good colorer." He doesn't belong in that class because it is not age appropriate for him. He belongs with his peers.
If I visit a church for persons with disability, my response is not, "Isn't it great that they have their own church!" My response is "Why aren't they with their peers?" If I attended a church local to that church, I would be ashamed that those persons with disability were so rejected, or felt so rejected that they had to start their own church. I would not tacitly accept that they were somehow different from me, of a different flock, ostensibly a different shepherd, such that they needed a different church.
You might respond, "Well what about denominationalism?" I would respond that persons with disability are born within denominations. They, at least by birth, are members of those denominations. If all the retarded people, by example, were Congregationalists, I would still argue that they should not be put in a separate Congregational church for the disabled people. But the fact that they aren't, that they represent all denominations, and that they need to form their own disabled church, indicts all of the denominations. They pat the people with disabilities on the back and say, "See you later" perhaps relieved that they no longer have to address the "problem" of disability.
But because we are one flock with one Shepherd, and should believe that we should all be one church, we need to do the required work to find persons with disability, bring them into our congregations, fight the rejection. Let the discriminators form the "Our Lady of those who Reject disabled People" church and they can deal with the Lord on the final day. Rather than rejecting those with disability, we should root out those who discriminate and reject them, find those who are unable to soften themselves and the environment to persons with disability and reject them.
My students at CBU have been interviewing their pastors about programs for persons with disability within their home churches. It has been interesting. A typical comment is, "We would welcome them if they came. We have elevators and are wheelchair accessible. We have disabled parking!" (Many of these things, by the way, were not there until required by law). But what they don't realize is, why would a group of people who have been rejected in the past suddenly go to a place which has rejected them? It would be like an all White church in the South in the 1960's saying, "We would welcome all the Black people if they came here." Well if you really wanted those people to come, you would need to go out and find them. You would need to try and convince them that they really were wanted there. To sit back and say "We would accept them, but none have come" is truly foolish in an age of discrimination. The fact that there are churches populated by persons with disability almost exclusively is a testimony to our failure.
McNair
(fcbu)
Tuesday, November 09, 2004
Something is happening
I had the privilege of lunch with Bob Drummond (I really had planned on paying, but he insisted, and I guess I didn't resist as much as I could have) last Friday. Bob is the Executive Director of Opportunity Schools, a program to help Christian schools develop special education programs. Anyway, Bob's dream is that all children with disabilities (particularly those with mild/moderate disabilities) who want to have access to a Christian school education will have access to one by 2010! Wow. That doesn't mean the program will be across the street, however, there would be the option should one choose to exercise it.
I am particularly excited about this because leaders like Bob, are going to influence the Christian school movement to increasingly include persons with disabilities in their big dreams. Changes in practice begin with changes in dreams, in vision. Christian schools are another aspect of the church that is attempting to be more open to those who have often been overlooked in the past.
McNair
(fcbu)
U.S. Catholic Bishops
The document is titled,
"This moral framework is based upon Catholic documents and serves as a guide for contemplation and action. We hope that the reaffirmation of the following principles will assist the faithful in bringing the principles of justice and inclusion to the many new and evolving challenges confronted by persons with disabilities today.
1. We are a single flock under the care of a single shepherd. There can be no separate Church for persons with disabilities.
2. Each person is created in God's image, yet there are variations in individual abilities. Positive recognition of these differences discourages discrimination and enhances the unity of the Body of Christ.
3. Our defense of life and rejection of the culture of death requires that we acknowledge the dignity and positive contributions of our brothers and sisters with disabilities. We unequivocally oppose negative attitudes toward disability which often lead to abortion, medical rationing, and euthanasia.
4. Defense of the right to life implies the defense of all other rights which enable the individual with the disability to achieve the fullest measure of personal development of which he or she is capable. These include the right to equal opportunity in education, in employment, in housing, and in health care, as well as the right to free access to public accommodations, facilities and services.
5. Parish liturgical celebrations and catechetical programs should be accessible to persons with disabilities and open to their full, active and conscious participation, according to their capacity.
6. Since the parish is the door to participation in the Christian experience, it is the responsibility of both pastors and laity to assure that those doors are always open. Costs must never be the controlling consideration limiting the welcome offered to those among us with disabilities, since provision of access to religious functions is a pastoral duty.
7. We must recognize and appreciate the contribution persons with disabilities can make to the Church's spiritual life, and encourage them to do the Lord's work in the world according to their God-given talents and capacity.
8. We welcome qualified individuals with disabilities to ordination, to consecrated life, and to full-time, professional service in the Church.
9. Often families are not prepared for the birth of a child with a disability or the development of impairments. Our pastoral response is to become informed about disabilities and to offer ongoing support to the family and welcome to the child.
10. Evangelization efforts are most effective when promoted by diocesan staff and parish committees which include persons with disabilities. Where no such evangelization efforts exist, we urge that they be developed.
We join the Holy Father in calling for actions which "ensure that the power of salvation may be shared by all" (John Paul II, Tertio Millennio Adveniente, n. 16). Furthermore, we encourage all Catholics to study the original U.S. bishops and Vatican documents from which these principles were drawn."
I found this a wonderful statement overall so I provided it here (with the weblink), but I will also go through the many points raised by this statement in future blogs. The U.S. Conference of Catholic Bishops website is searchable, and has much good information.
McNair
(fcbu)
Friday, November 05, 2004
Understanding Social Support
Social Support is "information" leading someone to believe
- He/she is cared for
- He/she is loved
- He/she is valued
- He/she is esteemed
- He/she belongs to a network of communication and mutual obligation
Cobb states that, this information fulfills social needs and protects from adverse consequences.
Robertson et al. (2004) observed that among persons with mental retardation (in particular) living in community group homes, 3-4% had a "neighbor" with out mental retardation. Overall, they had 3 or fewer persons in their social network (most often staff or family) and 10% had nobody.
I know I too can do much better in this area, but I provide an exhortation nonetheless.
If you were to ask me what a neighbor is (I hope you are not trying to justify yourself) I would refer you to Luke 10:29 and following where Jesus provides a good definition in the form of a parable. In case you are unfamiliar with the Bible, it is the story of the "Good Samaritan" which has become a part of culture, at least in America.
If you were to see someone lying along side of the road beat up and hurt, would you say, "I don't know what to do because I don't have any training" and then walk on? Of course not, you would do what you could do. Unfortunately, the most common excuse I have heard from Christian churches or Christian individuals as to why they aren't reaching out to persons with disability is "I don't have any training." Perhaps Jesus should have added that excuse in the story of the Good Samaritan. He might have said,
"But by coincidence, a certain priest was going on that road; and seeing him, he passed on the opposite side. A 20th century church member came upon the man and said to himself, 'I don't have any training, so it is not my responsibility to help this man' and continued on so he wouldn't miss The Simpsons. And in the same way, a Levite also being at the place, coming and seeing him, he passed on the opposite side."
At the NACSW conference, Jim Wallis (Call to renewal) spoke of an inner city worker who made the comment, "We are the people we have been waiting for" and spent herself working with persons in inner city Washington D.C.
Perhaps my altered version of the story of the Good Samaritan might be further changed in the following manner.
"But a certain traveling Samaritan came upon him, and seeing him, he was filled with pity, and said to himself, 'We are the people we have been waiting for. I am the person I have been waiting for.' And coming near, he bound up his wounds, pouring on oil and wine . . ."
If not you, who. If not now, when.
McNair
(fcbu)
Tuesday, November 02, 2004
NACSW Conference
For me, the highlights of the conference were presentations by David Beckman, president of Bread for the World (bread.org), Tony Compolo (tonycampolo.org) and Jim Wallis of Sojourners and Call to Renewal (calltorenewal.com). In each of these presentations, I noted the lack of mention of persons with disability in their calls to address issues of poverty. I spoke up in one of the sessions, and the speaker graciously replied that had overlooked that population, and not just in his presentation. I replied that the Church has overlooked that population.
It was then fun for the rest of the conference having people come to me saying, "You were the guy who raised the disability question!" Of course it was fun to have made such a contribution, but the fact that others resonated with my comment was very encouraging. One of the above speakers also indicated close personal experience with disability and how he felt that the church had done a good job in his regard. I replied that I was glad, but inwardly thought, "C'mon, of course your family member will have a positive experience, because of who you are." That is not to diminish what might have been a great church program, but sometimes persons in leadership think their experience is everyone's experience. I remember a university administrator indicating that he had always had a good and quick service from the campus' duplicating center when asked about them. Those of us in the audience replied, "Of course you did." He quickly got the connection that his experience was probably not the same as the rest of us as students, staff, etc.
But I am hopeful, and I am encouraged after attending the conference.
A small group attended my session on network assessment (which included a good dose of propaganda about church and disability) and seemed in agreement with the importance of the church as a network for adults with disability. A few figures from my presentation
- 3-4% of persons with cognitive disability have a "neighbor" without disability
- < or =" 3">
- 10% have nobody
- those in networks are largly paid staff and family
- from Robertson et al. (2004)
Apparently few people with disability have a neighbor. But then, you might respond, "Who is my neighbor?"
Well . . .
McNair
(fcbu)
Saturday, October 23, 2004
"Make the little children suffer," I mean, "Suffer the little children"
"The little children were brought to Jesus for him to place his hands on them and pray for them. But the disciples rebuked those who brought them. Jesus said, "Let the little children who are quiet come to me and do not hinder them" (sorry, strike that) "Let the little chidren come to me and do not hinder them unless they are disabled" (sorry, my bad again) "'Let the little children come to me and do not hinder them, for the kingdom of heaven belongs to such as these.' When he had placed his hands on them, he went on from there." (some old texts say, "Suffer the little children to come to me")(Matthew 19:13-15)
I suspect the children in this case were perfect little angels, bright eyed and intelligent, without a blemish of any kind, and quiet, wonderfully quiet. They were also probably clean and dressed well, oh yeah, and with good social skills. You see a lot of children like that running around in third world countries, particularly 2000 years ago.
If it weren't for how wrong it is it could be laughable. "The kids are too noisy." I would love to go toe to toe with such a person and have him name 15 children with disability that he knows, and how much time he has spent with them which gives him the experience to make such claims to those under him. Have Christian leaders never heard the story of the little children and Jesus? And what was the point of them coming to him? So that he could place his hands on them, one would assume to give them a blessing.
Our response today is not only do we not want to bless them, we may actually want to curse them. "They are too noisy" or "They have bad social skills" or "They are a black hole for service" or "They will disrupt the other children." In contrast, imagine a catechism class where the teacher says, "Jesus allowed all children to come to him, and so will we. We all need to learn to accept and love all children, so as long as I am the Catechist, these children will be given access."
An accepting situation such as this truly will reflect that "the kingdom of heaven belongs to such as these."
No retreat.
McNair
Friday, October 22, 2004
Metaphor as metaphor vs. metaphor as reality
There are other metaphors in the Bible, which when taken out of context can result in people being misunderstood and potentially ostracised. For example, the Bible will at times talk about people as being spiritually blind. It is a great metaphor as all one who is sighted needs to do is close her eyes to recognize that she would feel at a great disadvantage. The idea is, that spiritual blindness is similar to physical blindness in its effect on being able to find one's way. However, physical blindness is not spiritual blindness. A person who is physically blind is not necessarily spiritually blind. To equate the two would be a great disservice to the person who is a physically blind Christian.
At other points, people are given a disability by God for greater or lesser periods of time. Paul is blinded on the road to Damascus. Zechariah is unable to speak because of a lack of faith, Nebuchanezzar loses his mind because of his pride and vanity. However, not all who are blind are blind to catch their attention because they are persecuting the church. Not all who cannot speak are that way because of a lack of faith. Not all who deal with various forms of mental illness are that way because they were full of themselves. In fact in the overwhelming number of cases, blindness, speech or mental illness have nothing to do with an individuals behavior at all.
Unfortunately, the exceptions have resulted in Christian social constructions which make them more of the rule. As with the disciples we asked "who sinned?" when we see a person with disability. We ask, "What is God trying to teach you?" when we see a blind person, or think of the destructive lifestyle one must have lived to experience mental illness. We overgeneralize the experiences of a few people in history.
Whether it be the misapplication of a metaphor or the overgeneralization of experiences of people shared in the Bible, we must be careful in our application to people with disability. Metaphor is useful when it is taken as metaphor. The life experience of another is useful when taken within the full picture of the other person's life.
McNair
(fcbu)
Friday, October 15, 2004
Life changing interviews
It always amazes me, however, how such interactions can dramatically change people in terms of the way they think. Most or all of their lives, they have lived with the societal construction of what disability is and who people with disabilities are. They have lived with notions that they are sad, that they are discouraged about their lives, they look on people without disability thinking how unfortunate they are. However, when one meets a person with a developmental disability in particular, they learn that they are happy, they enjoy their lives, and they hardly give people without disability a second thought. I find that they largely don't even discriminate between people with or without disability in terms of friendship. Obviously my friends with disability recognize that I have a car, for example, and most of their other friends don't, but that perspective is much the same as I would have of a friend who happens to be wealthy in comparison to me. I think how it would be nice to have some of the same things she/he has, but beyond that I really don't give it much thought.
One friend of mine, has talked about how he wishes his apartment wasn't as expensive as it is, but that is mostly about having more expendable income to do other things he wishes he could do. We all feel that way at times.
As we debriefed at the end of the class session, I struck me that the friends I had brought to meet with my students had made such an effect them. I remarked to my students at the end of the class, that people like those they had met are the ones that the church is not going out of its way in bring into the church and are not being served in Christian schools. I encouraged them when they went to church this week to look around at their church to see if they saw any people like those they met at their church. If they didn't, then why not? They are definitely there in the community and would greatly benefit from church involvement.
McNair
(fcbu)